When will I find a balance? I call this the “Push-Pull Effect” which is a common marketing term but relates to us too… (think creatively)

So I started this LHON journey almost a year and a half ago. I have learned so much; through mentoring, trial and error and using all the great resources around me but no one teaches you the “push/pull effect”

I call the “Push/Pull Effect” this ongoing balance and battle between myself and those around me. Yes, I want you to help me! NO, please let me do this on my own. Yes, I can do that – please back off! NO, I don’t need help… you are just being annoying. haha – can you relate?

It’s a balance between me trying to figure out how to go on, how to cook, how to find something or take the time to read it on my CCTV and balancing that with asking for help. So many people are so willing to help (and I am so thankful for that) but sometimes I want to struggle for a second

I think I confuse asking for help as a sign that I am not capable of doing something. Or if I ask for help for someone to do something for me, I am lazy. But I am not. I am smart, capable and definitely not lazy. Sometimes it is OK to ask for help. There are SO MANY resources – why wouldn’t I use them?

And then there is the other side. So many are so willing to help and there are times when I need to do it myself. If you can teach me it, I will remember and I won’t have to ask next time. The more I learn, the better I will be. Sometimes I need to fall a bit to find solutions…. just don’t let me walk into traffic… kidding! But you get the idea.

Does this get easier? I think it does, because it has. But I think it takes time. So thank you and I am sorry at the same time! I promise I am not trying to be rude when I don’t want your help, I am just trying to find my way!

At age 27, I went blind from a rare genetic eye disease - Leber's Hereditary Optic Neuropathy. I am here to share my stories of how it is to get hit with a disability and how nothing should ever stop you from what you want to do.

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