BGCRH

20 posts
thirty! (a birthday post!)

Milestone birthdays are a time to celebrate, reflect, and set new goals.   Looking back, there is no way I could have predicted where I would be today, but I couldn’t be more proud.  Losing vision over three years ago really made me see life a little differntly- which I am so thankful for.   I set a goal to raise money for LHON and started Dinner the Dark which I...

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DINNER IN THE DARK 2015

Please join me for a unique dining experience. Enjoy "DINNER IN THE DARK" completely blindfolded on Sunday, October 4th to raise awareness for those blind or visually impaired. Two years ago, I was affected with Leber's Hereditary Optic Neuropathy. Leber's Hereditary Optic Neuropathy (LHON) symptoms usually begin as sudden, painless loss of central vision. After this "acute phase", severe visual loss in both eyes remain. Reading, driving and recognizing faces are impossible. About...

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Blind Traveler! traveling the airport solo!

I FINALLY DID IT! I took my very first plane ride by myself. You know, the airport is a pretty scary place full of lights, people, and tight timelines... or so I thought as a blind traveler. I was TOTALLY wrong. I checked in with the Disabilities Service Desk at the airport and asked for assistance. I was greeted by an airport employee. I was taken by wheelchair as I...

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LHON takes over DC!

Last month we headed to Washington DC for some sightseeing. the annual LHON Symposium and a day on Capitol Hill. It was hot, humid and unforgettable!! My mom and I adventured through historical monuments the first two days of our trip. As we trekked over 32,000 steps in one day - we covered the Lincoln Memorial, Washington Monument, Veterans Memorial the White House and Arlington Cemetery all by foot. The...

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finding a balance

When will I find a balance? I call this the "Push-Pull Effect" which is a common marketing term but relates to us too... (think creatively) So I started this LHON journey almost a year and a half ago. I have learned so much; through mentoring, trial and error and using all the great resources around me but no one teaches you the "push/pull effect" I call the "Push/Pull Effect" this...

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VRATE 2014

VRATE is your ultimate one stop shop.  If you are or connected to anyone blind, visually impaired, low vision or blind/deaf - this is the place you can find everything you need. You can find all the right resources, agencies and technology within Arizona in one room!! And the best part?  The blind community is always changing and always bringing something NEW to offer.  Technology, Vocational Rehab, Mobility, Support Services...

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Dinner in the Dark: 2014

How can I describe the feeling of being in a room surrounded by 95 people who care and support you? Can I tell you how I feel like I am floating from success? My family and I held 'Dinner in the Dark', a unique dining experience where you enjoy all three courses completely blindfolded. As friends and  family arrived they were blindfolded at the door. Friends from the Arizona Center...

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Be My Eyes; Running with a guide

After I left the LHON Symposium in June, I left with the "I can do ANYTHING" attitude. I started talking about how I LOVED (past tense) to run. I used to love to run but haven't since I went blind. Why? I jumped on Facebook, found the Achilles International and some AMAZING connections within the running community. The response I had gave me the goose bumps. These people don't even...

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Mobility Training – A hurdle worth jumping

Mobility Training (definition) : A blind or visually impaired person finally realizing that you can be totally independent and do whatever yoy want with a few simple tools: A mobility cane, a sense of direction... or compass, and the ability to ASK for help. I thought there was going to be some  magic trick or secret to all the questions I had about mobility. What is the secret to crossing...

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You want me to do what?? // Mobility Training, Day 1

Is it weird that I forget that I am blind sometimes? Not seeing faces is sometimes normal to me and I feel I do a pretty good job of carrying about my day with this underwater vision. It's normal for me to have my computer screen zoomed in at 28x and have these letters displayed across my monitor so someone 3 miles away can read it...haha. I have learned to...

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